Winding in the light

I have a wound on my abdomen, a literal open wound where my stoma was. Every night I undress it, removing long thin strips of gauze before replacing them with clean packing, manipulating the tendrils with sterilized scissors. It is graphic, visceral. But I prefer to do it myself. I prefer this active stewardship of my body.

It is healing, closing up along the seams that have formed on my skin, one on each side. I am participating in the act of healing my body. Soon the line will be continuous, all the tissue underneath knitted together. Just a line that keeps a secret, like lips sewn shut. No one will ever look at this scar and know I had an ostomy until I tell them.

My GI tract is trying to figure out how to work with this new continuity. It hurts. It feels like everything holding my abdomen together on the left side is trying to give out. I am starting the very slow and arduous process of regaining strength and routine. It feels like a lot on some days. Today it feels like a lot.

But two years ago this was unfathomable. Even six months ago, I thought I knew pretty well the path my life would take it, and it was a short road, a straight line to pain and anaphylaxis and liquids and soft solids forever. I still see that road, but it is longer and it winds its way more into the light.

I don’t believe anymore that there is any fear that is so wide and so deep that you cannot meet it. I just don’t believe it.

7 Responses

  1. Ruth Heasman June 5, 2015 / 3:53 am

    Great post and great message, thank you! Very uplifting.

  2. Branchofthevine June 5, 2015 / 7:15 am

    This is so encouraging to read! Thank you for sharing your journey and your struggles. Im so excited for your healing. The body is an amazing thing, and you are so brave.

  3. Kristin Elam June 5, 2015 / 8:37 am

    I love your posts, strength, courage, and wisdom!

  4. Suzanne Prentice Alfeld June 5, 2015 / 10:42 am

    You write with such wisdom and passion. You think of others all the time as though you are perfectly fine. The picture on your site shows a wonderfully happy and healthy Lady. I forget about real life. Thank you for reopening eyes. My prayers are with your healing, your spirit and your life. Blessings to you Dear Friend.

  5. Temperi Dae June 5, 2015 / 4:00 pm

    Beautiful as always.The substance in your words comes not only from experiencing this disease firsthand but also in learning how to thrive even in spite of the circumstances.Along with your solid understanding of science you have helped to shed a ray of light and hope for us all!

  6. Cindy Maak June 7, 2015 / 7:26 am

    Sending you healing thoughts! Take care.

  7. Yvonne June 8, 2015 / 11:57 am

    I really wish you a safe journey through healing. It’s amazing how the body can heal when it is given the chance. Best wishes

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